Twelve weeks ago, we found out that Seth has down syndrome. He also has what is called and omphalocele. (This means that he has a small hole in his abdomen and a portion of intestines protruding outside it.) This means that he will be in the NICU for a few weeks after birth before coming home. Everything about this birth is going to be different. I am not going to be able to hold him for days, feed him for at least 1-2 weeks, take him home to our family. So yes, I am very excited, but also sad. Sad about what I am going to miss the first days of his life and what I am going to have to adjust to for the rest of our lives.
This site is to help keep all of you updated on his first few days of life and his milestones throughout the months to come.